June is Migraine Awareness Month.
As many of you know migraine is a big part of my life. It has been for the past 14 years (and counting). I have spent a lot of time and a lot of money on managing my migraine. Trying to learn all I can about it, why my symptoms are the way they are and how medications can help or hinder as the case may be.
It’s not a fun process and there are more of us than you’d think.
In fact when you start to look at the stats it’s quite a daunting sight. Approximately 5 million Australians live with migraine and there is suspicion that there is far more than that estimate. Stigma, debilitating symptoms, struggling to advocate for yourself and being put through the wringer of medical situations all make you want to hide away from the world. I know I’ve had my low moments, and the frustration of trying to explain to someone who has no idea of what it’s like, and repeating yourself so many times over… It’s too much and not enough all at the same time.
This year I decided to take on a more active role in the migraine community and so I signed up as a volunteer with Migraine Australia and I became part of the Advisory Committee, a group that is made up of the sickest of the sick, the unusual (me) and at least one representative of each type of migraine. Along with that I am organising the Community Quilt Project, my favourite pastime rolled into volunteer work!
This is all kicking off on the 1st of June. I will be sending out a pack to everyone who signs up to make a block for the quilt – the only criteria is that you have migraine – you don’t have to be a member or volunteer. There are instructions in the pack along with your base fabric square. I’ll also be running some Zoom sessions for those who aren’t of the creative mindset, anyone who needs help and those who need step-by-step guidance. Dates for these to be advised. The packs will be sent out in batches as sign ups get to certain amounts to reduce my running back and forth to the post office.
Sign up here —-> https://form.jotform.com/241343616133852
We are asking anyone who makes a block to create what their migraine story is for them – imagery and symbolism, literal, abstract or emotive. We want to see what you feel, your perspective and once you’ve made your block – following the instructions in the pack, they’ll get sent back to me to assemble into a large quilt. Once it’s all done we will be organising a handover ceremony to present it to Canberra in an effort to draw attention to the needs of the migraine community.
Our theme is “Stronger Together” which is the most perfect tie in to quilting and the idea of a quilt being made up of smaller individual pieces. Quilting and sewing has saved my mental health many times over the years and I do not know where I’d be without it. Our hobbies are so valuable as an outlet but also as a distraction. I know when I’m in a bad way, pain and burning taking over my brain, that a monotonous task that I can do for a quilt project is the best at keeping my hands busy and my mind occupied when I just can’t be in bed any longer.
I will be documenting the process here on my blog along with all the MA socials so make sure you stay tuned to see what we get up to.
I’d loved to have you join us if you live with migraine, but if you don’t and you know someone else who does please share this initiative with them. Who knows you might just give them the gift of a new hobby and some new friends.
There are also lots of other exciting things happening this month to raise awareness – activities that are free to join in with on socials and if you feel so inclined places for you to donate to help us behind the scenes.
To read more: https://www.migraine.org.au/
To donate to the quilt project: https://www.migraine.org.au/community_quilt
To donate: https://www.migraine.org.au/donate
M x